Patient Support Center
Support for your patients and their families from diagnosis through survivorship
From diagnosis through long-term recovery after hematopoietic cell transplant (HCT), your patients and their families face more than medical challenges. Our NMDPSM Patient Support Center is here as an extension of your hematology/oncology practice or transplant center team. We supplement the expert medical care you provide, addressing crucial needs beyond clinical care and empowering patients throughout their treatment journey.
One-on-one support and resources for your patients and their families
Your patients, their caregivers and their loved ones can receive tailored information and support from our Patient Support Center team before, during and after transplant. Our team devotes as much time as needed—at no cost to you or the patient.
Be sure to send your patients and their loved ones to our Patient Support Center hub for patient-friendly information and resources that is also available in Spanish.
Explore how we can work together to support your patients
Helping patients and their loved ones navigate the transplant journey
NMDP provides an extra layer of support for your patients and their loved ones as they navigate the complexities of transplant—from answering common questions about the donor search process or financial assistance to helping them with coping strategies or preparing for life after HCT to adjusting to the role of a caregiver and much more.
We complement the care you provide patients and their loved ones with:
- Step-by-step navigation
- Tailored emotional and practical support
- Bilingual navigators and social workers (English and Spanish) and interpreter services in 100+ languages
- Financial grants to reduce barriers to treatment
- Patient-friendly education in multiple languages and formats
- Peer support for patients and caregivers
Who our team supports
Our Patient Support Center team helps patients, their caregivers and family members who are:
- Exploring transplant or clinical trials for blood cancers or disorders
- Preparing for or recovering from a related or unrelated allogeneic transplant
- Living with sickle cell disease
- Receiving CAR-T therapy for a blood cancer
- Coping with the loss of a loved one who received cell therapy
Call or text: 1 (888) 999-6743 | Email: patientinfo@nmdp.org
Patient financial assistance
NMDP offers financial assistance to help patients get the cell therapy they need and thrive after treatment. The grants can help patients pay for unexpected expenses, medical copays, non-medical expenses like food and gas, and travel costs.
Tailored practical support
Our certified oncology patient navigators and blood and marrow transplant (BMT) social workers guide patients, caregivers and loved ones through non-medical aspects of care. They tailor their help based on age, diagnosis, language, culture and other patient needs.
Package of Hope
We proactively reach out to patients with a Package of Hope after a preliminary or formal search of the NMDP RegistrySM. The package shares information about NMDP and how we can help.
Our navigators follow up with a phone call for some patients who may need additional support navigating transplant.
Peer Connect Program
Sometimes patients and caregivers just need to talk to someone who's been in their shoes.
Through NMDP Peer Connect, they can talk one-on-one with trained volunteers who have been through similar experiences.
Clinical Trials Search and Support
Finding an appropriate clinical trial for a patient can be challenging and time consuming.
Our Jason Carter Clinical Trials Search & Support Program can help with one-on-one navigation and an easy-to-use clinical trial search tool.
Emotional support and counseling before and after HCT
Sometimes patients and caregivers need help coping with emotional, social and practical challenges around their illness and HCT. That's where the NMDP Patient and Caregiver Emotional Support (PACES) program can help. We offer support in English and Spanish.
How NMDP PACES helps patients and caregivers
Our licensed social workers help patients and caregivers improve their coping skills and quality of life through:
- Regular phone or video calls in an eight-session counseling program
- Check-in calls for brief emotional support
- One-time conversation to find support resources
- Survivorship Chats group support for HCT recipients
Funding from AstraZeneca in support of PACES made this video possible.
Free educational resources to view, download, print or order
Our free patient education resources are available for you to use with your patients, caregivers and families. Our goal is to supplement your center's educational efforts. Experts review every resource for accuracy and readability to ensure all patients get reliable information.
Resources and support in Spanish
We provide bilingual support and educational materials to ensure Spanish-speaking patients and families can navigate treatment with confidence. One-on-one services available in Spanish include patient navigation, Clinical Trials Search & Support (CTSS), Patient and Caregiver Emotional Support (PACES) and Peer Connect.
To connect with a Spanish-speaking navigator directly:
- Call or text: 1 (888) 999-6743, Ext. 2
- Email pacienteinfo@nmdp.org
- Submit form: BMT Navigation Request (Spanish)
Support for caregivers and parents
Our navigators and social workers offer personalized guidance and support for caregivers of adult patients and parents of pediatric patients. They can contact us directly or you can request a connection for them.
Call or text: 1 (888) 999-6743 | Email: patientinfo@nmdp.org
Resources to share with caregivers and parents
Caregivers Companion
This guide (available in English and Spanish) offers practical tips and resources that will help caregivers and parents cope with challenges and develop new strengths as they care for a loved one throughout the HCT process.
What it's like to be a caregiver
In this short video, Todd shares what he learned about being a caregiver—and the importance of taking care of himself—as he supported his wife, Ashlee, throughout her HCT journey for leukemia.
Ava + Bo videos and booklet
Ava explains HCT in a kid-friendly way to help children and their siblings understand what's happening.
The animated video series is helpful for any child with questions. The free activity book includes sections for the child having transplant, siblings and parents.
