Patient and Donor Confidentiality
We are committed to protecting the identity and privacy of all patients and donors, and, as such, we comply with all applicable local, federal, and international laws.
The forms below detail our confidentiality policies. If you have any questions on a form or policy, please contact us at patientinfo@nmdp.org.
- PL-00017 Confidential Information Policy (Legacy P00023): Policy to protect against unauthorized disclosure or use of confidential information.
- SOP-00106 Confidential Information Standard Operating Procedure (Donor/Patient Confidentiality) (Legacy S00339): Procedure for protection of confidential information and response to disclosures of such information.
- Confidentiality Guidelines for Working with the Media: Guidelines for protecting donor and patient confidentiality when working with the media.
- Guidelines for Social Media Sharing: Guidelines for donors to use when sharing donation information on social media websites.
- Social Media Confidentiality Guidelines for Network Partners: Guidelines for social media best practices for maintaining donor and patient confidentiality.
- International Policies Regarding Post-Transplant Communications between Donors and Recipients (XLSX): Listing of international cooperative registries, donor centers, and transplant centers, and their policies regarding communication between donor and recipient and patient updates.
- AID-00098 Anonymous Correspondence and Gifts: Policies and Procedures (Legacy A00501) Procedure for effectively reviewing and submitting to the NMDP cards, letters, and gifts to be exchanged between donors and recipients after transplant.
- PL-00065 Confidentiality Information Policy (Related Donor/Patient Confidentiality) (Legacy P00087)
Policy to protect against unauthorized disclosure or use of confidential information for related donor/patient activities. - SOP-00254 Confidentiality Information Standard Operating Procedure (Related Donor/Patient Confidentiality) (Legacy S00621)
Procedure for protection of confidential information for related donor/patient activities and response to disclosures of such information. - AID-00097 Procedure for Obtaining Post-Transplant Consent to Release Personal Information (Legacy A00500)
Procedure for communicating a donor or recipient's request to exchange personal identifying information with their corresponding donor/recipient after transplant. - FRM-00556 Post-Transplant Consent to Share Anonymous Correspondences (Legacy F01367)
- FRM-00557 Consent to Share Anonymous Correspondence - Spanish (Legacy F01368)
- PL-00113 Policy for Sharing Post-Transplant Anonymous Correspondence (Legacy P00147)